Newborn ALD Screening Study: Summary Report



Newborn Screening for ALD in Taiwan


Sex-specific newborn screening for X-Linked adrenoleukodystrophy in the Netherlands

Newborn Screening Study

Scoping Study with Genetic Alliance

Childhood Cerebral Adrenoleukodystrophy (CCALD) Research Study

New Born Screening for ALD Round Table

Important : Newborn Screening Consultation Outcome


Matt Hancock's personal mission to drive the expansion of Newborn Screening

We have hit our 10K Signature Target
APPG Meeting - Newborn Screening- 9th June 2021


South East Today - BBC News - ALD Newborn Screening Campaign


Leader's Questions 20.05.21


Never Forgotten

Scots grandad living with ultra rare incurable disease says everyone should be tested at birth

CALL FOR PARTICIPANTS. Exploring family communication following adrenoleukodystrophy diagnosis

ARE YOU AFFECTED BY ALD OR AMN? HELP US NOW AND RESPOND!

Why is ALD Newborn Screening so very important?

Why is ALD newborn screening not recommended by the UK National Screening Committee?

Alex TLC patron, Britt Ekland, describes the agony of finding out her grandson has ALD