The Generation Study - article raising concerns


Gene therapy for CCALD is not available to treat children in Europe due to dispute

ALD and MLD to be conditions included in the Generation Study


Dutch ALD newborn screening


Newborn ALD Screening Study: Summary Report

Newborn Screening for ALD in Taiwan


Sex-specific newborn screening for X-Linked adrenoleukodystrophy in the Netherlands

Newborn Screening Study

Scoping Study with Genetic Alliance

Childhood Cerebral Adrenoleukodystrophy (CCALD) Research Study

New Born Screening for ALD Round Table

Important : Newborn Screening Consultation Outcome


Matt Hancock's personal mission to drive the expansion of Newborn Screening

We have hit our 10K Signature Target
APPG Meeting - Newborn Screening- 9th June 2021


South East Today - BBC News - ALD Newborn Screening Campaign


Leader's Questions 20.05.21


Never Forgotten

Scots grandad living with ultra rare incurable disease says everyone should be tested at birth

CALL FOR PARTICIPANTS. Exploring family communication following adrenoleukodystrophy diagnosis