On Wednesday 9th June, the All Party Parliamentary Group (APPG) on Rare, Genetic and Undiagnosed Conditions held a meeting on newborn screening. The Newborn Screening Alliance is working with Genetic Alliance UK to improve access to newborn screening.
Guest speakers at the meeting include:
Professor Simon Heales, Great Ormond Street Hospital
Professor Laurent Servais, UK Newborn Screening Alliance
Dr Will Evans, Niemann-Pick UK
Amanda Mortensen, Batten Disease Family Association
Karen Harrison, Alex The Leukodystrophy Charity
Georgina Morton, ArchAngel MLD Trust
Watch the meeting below: