Alex TLC are proud to be part of the group of patient organisations campaigning to expand the newborn screening programme, and we welcome Matt Hancock’s personal mission to make this happen.
Our Support Manager, Karen, also spoke alongside other supporters of this collaborative campaign at Genetic Alliance’s All Party Parliamentary Group meeting.
The meeting further highlighted the importance of early diagnosis for sufferers of multiple rare conditions such as ALD, and ensuring that the UK’s newborn screening programme is comparable to other European countries. #UKNewbornScreening #screenourboys