The UK is far behind most European countries for how many conditions are screened for at birth using the heel prick test. Genetic Alliance UK presented this Patient Charter and recommendation for improvement to Parliament, which can be downloaded below. This report is currently endorsed by over forty patient organisation members. Alex TLC provided the case study as part of the research behind this important report.
UK Newborn Screening Patient Charter
Genetic Alliance Patient Charter
Download PDF • 10.01MB